Recent content by DragonClaw

  1. DragonClaw

    Continuing my career with marfans?

    Yes, and the people whose parents have huntingtons should just live life as if they're perfectly healthy and never get tested. I've got an appointment scheduled with a top geneticist, they'll schedule me for an echo before I have the appointment with her. Not much to do now but wait...
  2. DragonClaw

    Continuing my career with marfans?

    I told my dad years ago I thought I had it, as a young teen. I gave him a few symptoms like positive wrist and thumb sign, my build, etc. He didn't even give it a second though. Dismissed me as being lazy and looking for excuses. Just weak and pathetic as usual basically. My fiancé didn't...
  3. DragonClaw

    Continuing my career with marfans?

    Being a benchwarmer? Cool. Maybe I don't want to live half a life, being very careful not to get my heart rate above 70 in case my 131/86 ruptures my glass cannon of an aorta/heart. Maybe I don't want to be robo-meter maid because he can't be a real cop. Guys can you carry this pillow...
  4. DragonClaw

    Continuing my career with marfans?

    I've got an appointment in November with a specialist. She's a top doctor even it comes to marfans and genetics. Before I see her, they're going to schedule me an echo. They're going to try to bump my appointment up, though. In the mean time, I overthink. I don't know what else to do...
  5. DragonClaw

    the 100% directionless thread

    Vagus nerve particularly. And I'm sure many other things.
  6. DragonClaw

    Continuing my career with marfans?

    I agree
  7. DragonClaw

    Continuing my career with marfans?

    I will have to do a lot of discernment and thinking. I know that. Originally I thought "**** it, I'll be a field medic anyway" But then I though about how if I passed out due to a heart issue, got a collapsed lung or a more severe dislocation or such, then it wouldn't be fair to...
  8. DragonClaw

    Continuing my career with marfans?

    I have talked about med school. But I just feel.. bad... about my future.
  9. DragonClaw

    Continuing my career with marfans?

    I've got the high arched palette, the overvbite, temporomandibular joint disorder, dislocations, easy bruising, never could put on weight, fat, muscle, my joints naturally hyperextend. I've got the long fingers and toes, compared to the woman in my family, I'm tall. I saw a rheumatologist that...
  10. DragonClaw

    Continuing my career with marfans?

    So I've not been as active lately, but something came up. It looks like I've got Marfans. I'll need additional testing, but it's a 99% thing. I've already had dislocations, among other things. It explains a lot of my symptoms, inability to gain muscle, severe bruising, slow healing fatigue...
  11. DragonClaw

    the 100% directionless thread

    And some people here think I don't contribute much . SMH 😔
  12. DragonClaw

    the 100% directionless thread

    Fish.... why?
  13. DragonClaw

    the 100% directionless thread

    What do you call the little plastic, waxy containers you keep respiratory meds in? They remind me of wax bottles but plastic. Albuterol, levalbuterol, Ipatropium come in them.
  14. DragonClaw

    the 100% directionless thread

    My Hispanic side of the family has genetic White Coat Syndrome. They don't go until they code.
  15. DragonClaw

    the 100% directionless thread

    The longer I'm in EMS the less I feel inclined to tell anyone what I do at all. I just want to smile and nod at the thoughts they have and go "yep, you betcha"
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