Recent content by Dada Simba Detuned

As much as I would like to advocate on my own and others' behalf... This is getting a bit detailed and personal for posting on a public forum where I don't know most of you. What is the relevance of these extremely detailed questions? I'll try to answer to the extent relevant to this...

See, this is where I disagree... when my "emotional event" converts into systolic pressures north of 160 the hospital won't let me leave the ED until it goes down. No matter what I do or say. (Of course I also clinically present with other disturbing symptoms that don't look like a panic attack...

Both... A lot of the literature suggests than this is a dispositive criteria... they are DEF'y worse if witnessed by someone who makes me more anxious, either because they are scared or I think they will call 911. But I do have them alone at home (which is when it really sucks).

I'm not asking you to... I'm asking you to listen to and respect me when I (try to through my stuttering) explain that I will remain much calmer if you let ME put the seatbelts on and let me get into the truck myself without you touching me unless I am actually falling down and about to hurt...

I'm sorry about your wife... but... MY point is that if my head is bleeding and I'm concussed and/or aspirating vomit I deserve attention before other patients who are not as acute... I am "one of these patients" and I have a right to appropriate and compassionate medical case as much as your...

I have done all that you suggest as part of my past jobs... I worked in an emergency room in the 80s and as part of my job as an emergency response planner I did the rest... I get it... but just because many of your patients are "faking and drug seeking" in your opinion doesn't mean that we all...

I get it, really I do... But there are still things you can do to help minimize the psychological distress experienced by your patients that in the case of PNES can exacerbate their acute symptoms. A lot of my points apply to other health conditions as well, but as I am not diabetic or have...

You're welcome to come hang out with me in Boston and come along in the truck... ... the next time I have a PNES! I don't like it (at all) and neither do most of my health care providers... but such is the state of our current health and legal systems (part of why I retired from the practice of...

I personally do not have a Dx of fibro But some of the medical literature shows a correlation. It's not clear whether the fibro is considered to be "psychogenic pain" for those patients or not. I DO have chronic pain, but I'm almost fifty and have had a bad colles fractures with subsequent...

Um... not in MA If I try to refuse, they will physically force me to go... possibly precipitating an even more severe PNES... which leads to involuntary hospitalization and commitment with benzos and haldol... been there, done that... until you try to refuse care/transport under my...

agreed... If I'm aspirating, I want you to treat me like any other patient who is aspirating. And the nomenclature point is a good one... mental health and PTSD health professionals and survivors use the word quite differently than first responders (I've worn all of those hats at some...

It's a liability problem there is currently no definitive way to rule out epilepsy in PNES patients, so during any given PNES episode I could be having an epileptic episode. When I try to refuse transport I am told that I do not have that option, so I comply. No health care provider who I have...

So you are again judging me... What do you know about how many years I have worked more than 40 hours a week and paid into the social security system. Do you know how many hours a week I work right now WITH my PNES? I'm sorry that you feel that I am not entitled to live and work with a medical...

You are assuming that I am choosing to be your patient... which is not usually the case. I let someone call an ambulance about 3 weeks ago voluntarily because I had a noro-virus type of infection and could not stay hydrated and needed IV hydration. The rest of the time OTHER people call and...

I am trying, I assure you... but it is not as easy as you seem to think I am not "blaming PNES" or any other medical condition... I am merely try to explain that I am in this moment doing my best to respond to questions... but that it makes it much more difficult if I feel the need to...